|Fall down seven times, stand up eight|
I doubt many of you know this, but November is worldwide CRPS/RSD awareness month. It is such a rare disease that effects so few people (thank God) but it still affects people. Kids like me, adults, it can even affect animals. I always strive to make people aware of this terrible and confusing disease. We may look completely normal... We might laugh and smile... But that does not mean that we are not constantly in excruciating pain. We have learned to live with it. Don't say we are faking. Don't say that we are just having a bad day and it will be fine. Do say how strong we are; how amazing it is that we cope with it.
I wish I would have done more this month but why does one month matter more than the others? Why can't every month be filled with such passion from the families of those affected? Why aren't there fundraisers every month and walks and 5ks? That just isn't how it works, I guess. It should though, right? We should always try to help each other no matter what the situation. So many people fundraise for cancer research and the goals they reach are phenomenal! Why stick to one problem though? CRPS is so rare and affects so few people that nobody knows enough about it to know what they should be fundraising for as well! If each of you who read this tell one person about it... it could really make a difference. Awareness is key for early detection and knowing how to treat people with this condition. You could be the reason someone goes into remission from early detection simply by telling someone about it who can start a chain reaction. I'm sitting here smiling just thinking how great that could be making sure nobody else has to be in my position I am in today. (Basically today is the third day my left knee has been dislocated due to dysfunctional muscles spasming and pulling my knee cap out of place.)
All in all, I just want to say how important it is to CRPS fighters and their families that something is done for this. I cannot stress enough how much awareness means to us and how important research funding is! Here you can donate to help RSDSA provide support, education, and hope to everyone affected by CRPS/RSD while we drive research to develop better treatment and a cure.
|Burning for a Cure|